I have been busy running around lately, taking care of business for the project (thank you to everyone that helped to fund my project - you are wonderful), visiting friends, and basically missing a lot of what has been going on in village. So it had been a while since I had seen my neighbor, Mariam, who has been ill for a very long time. One afternoon last week, her sister came over to my house to tell me that Mariam wanted to speak to me. I was a bit puzzled, but that is nothing new.
I couldn't believe what I saw when I found her. All the color had faded from her skin, which was covering nothing but bone. When I had seen her last, she was visibly ill, but still walking around and very sociable. At the time, I had recommended to her mother, Denday, that she go to Bandiagara to get treated, and the doctor in the neighboring village had suggested the same thing to Mariam. They weren't interested. So I had left it at that. Now two weeks later, Mariam is unable to walk, and she has stopped eating for the most part. She is confined to a mat on the ground for most of the day and night. The strangest part of it all was that no one had spoken about her to me in all of that time. Living in a small village has many advantages, but one very large disadvantage is that everyone knows everyone else's business all of the time. So I knew full-well that everyone knew about Mariam's condition, but no one was talking about it. Or at least not to me. She called me over to give her an IV. When I told her that I didn't have one, and even if I did, I wouldn't be able to administer it, she begged me to find her one. She didn't care; she was desperate. I left totally confused about what was going on, and decided to ask around. It actually only took me one response to figure it out: her husband had died of the same thing last year. Of course - AIDS. I think that the reason that I was so blind to that possiblity was that there really is not a very high rate of HIV infection in my community. For the most part, people tend to stay in village, and they are not coming in contact with people that are at highest risk in this part of the world (prostitutes and truckers). So it didn't even dawn on me. But now it made sense why I had heard so little about her, or why no one had been over to help her out. Or why her own mother, who I talk to everyday, said nothing to me about Mariam. Everyone was scared, so they were pretending that she was not there. Not much is well understood about HIV/AIDS in rural Mali, so there is a large amount of fear surrounding the disease. So much fear, it turns out, that people are willing to turn their backs on their own family - something that I have never seen before in Mali. I was heartbroken for Mariam, and concerned about the message that this was sending to the village about AIDS. I decided to contact the doctor in the neighboring village to find out what I could do. He was very pleased to inform me that there is a non-profit organization that works with the hospital in Bandiagara to provide full health care for people living with AIDS. But the catch is that I would need to get Mariam to Bandiagara for tests in order to then get the care. When I asked her if she would be willing to go, Mariam said with absolutely no hesitation that she would go. So we planned to head out the following morning.
After bundling her up in a sweater and shuffling our way over to my house, Denday arrived just in time to tell me that Mariam was not permitted to go. When asked why, she said that money was the problem. I said that she could use the money that she was putting away to buy a peanut grinder, but she let me know in no uncertain terms that the peanut grinder was more important than this trip. So I told Mariam the bad news, walked her home, and then locked myself in my house and cried. After realizing that that was going to accomplish nothing, I biked back over to the neighboring village of Ouo to speak with the doctor again. He said he would come by that afternoon to see if he could help straighten out some of Denday's ideas about the illness. He was masterful, and Denday agreed that she would accompany Mariam the following morning to Bandiagara.
My neighbor agreed to take us to the road on his donkey cart so that Mariam would not have to walk the 1.5 rocky kilometers to the road. Again the next morning, I bundled up Mariam and sat her down at my house, only to discover that Denday had changed her mind, and she would not be accompanying Mariam to the hospital. I would have to go on my own, which was not ideal, but feasible. When I asked my neighbor if the donkey cart was ready, he told me that Mariam was "dirty" and that he would not take her. I decided that it was time for the village chief to intervene, so I told him of the situation, and he made my neighbor prepare the cart for us. It is nice having the chief on my side. As we loaded up, and I braced myself so that Mariam could lean against me for support, everyone disappeared into their houses. Usually a departure from village involves lengthly goodbyes with lots of benedictions and requests for items from town. No one said anything; they all went inside to hide, because they couldn't look at her, and knew that she would be able to see their fear and shame. It was horrible and lonely, and I couldn't believe that this poor woman was stuck with just me. As the sun was rising, we headed off on our own, and made it about half way up the hill when I turned back to see a figure running up to us. The sun made it impossible to tell who it was, and it wasn't until he was almost next to the cart that I realized it was the chief of the village. I cannot begin to describe the significance of that act, and I will forever be grateful for his amazing show of support. He did such a good thing. What a good man.
I will tell you about the trip to the hospital in the next blog - sorry, I'm exhausted.
